Great news folks- KCGB member Amy Musto is doing a skydive to raise funds for the only UK Keratoconus charity http://www.keratoconus-group.org.uk/
In February 2013 Amy was diagnosed with Keratoconus after noticing a significant change in her eyesight over a short period of time. Luckily the condition had been caught before it became too aggressive and Amy was offered cxl Collagen Cross Linking treatment (custom-made riboflavin drops saturate the cornea, which is then activated by ultraviolet light) which she had done in March 2013. Collagen Cross Linking is not a cure for Keratoconus but the aim of this treatment is to stop the progression of the condition.
Please donate and support Amy in her quest to raise money for Keratoconus Group UK, our only charity in the UK. please share our posts about this on Facebook and Twitter and help raise awareness!
Follow Amy and KeratoconusGB and Keratoconus Group UK on Twitter:
@Amymusto
@keratoconusGB
@KCSupportUK
Keratoconus GB Living with Keratoconus 
How great! We so need a KC charity in the US due to CXL being SO expensive and the fact that some of us (right here) can’t get insurance that covers KC lenses, which can be in the thousands. Way to go, Amy… 🙂
Thanks! Would you believe this post has been deleted by another so called kc support group in Facebook? Unbelievable
Actually I can, which is why I think your group is so great and it takes a good leader or it doesn’t work. People can be so vicious online that I’ve had to remove myself from online “support” groups due to their toxicity! As if we don’t have enough on our plates!