Hello everyone We thought that now we have so many members across this blog, Facebook, Twitter and so on that we ought to meet up and put faces to names, to share our KC stories and learn more about each other and living with Keratoconus. ALL WELCOME This meet up is entirely informal and open … Continue reading KERATOCONUSGB KCFAMILY KERATOCONUS MEET UP LONDON 2014
Normality or Keratoconus? Why not both? Most of the time I like to pretend that I am normal but a few facts give me away: I have never met anyone with eyesight worse than mine I can drive a car but will rarely do so after dark I know from memory the first 3 lines … Continue reading Keratoconus- my story by Clare, UK, CXL & more
A question we are often asked on our Facebook page and group and on Twitter- can I travel with keratoconus? Can I fly? Commercial airline cabins expose passengers to reduced atmospheric pressure, reduced oxygen availability, and dry air. However if you are careful there is no reason at why you cannot travel. Contact lens wearers … Continue reading Keratoconus – can I fly with contact lenses?
Hello everyone, My name is Leonie, I’m a 23 year old Dutch lady and I have Keratoconus. They found out I have this eye disease when I was about 12. I had been wearing sclerals for almost 3 years, when I was 15 I had to get my first corneal transplant or graft. When I … Continue reading Keratoconus- my story by Leonie
Great news folks- KCGB member Amy Musto is doing a skydive to raise funds for the only UK Keratoconus charity http://www.keratoconus-group.org.uk/ In February 2013 Amy was diagnosed with Keratoconus after noticing a significant change in her eyesight over a short period of time. Luckily the condition had been caught before it became too aggressive and Amy … Continue reading Keratoconus SKY DIVE! Raising funds for http://www.keratoconus-group.org.uk/
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2012 was shaping up to be a hard year.... 'Crying myself blind' In January my mom was diagnosed with breast cancer and underwent a mastectomy, then started chemotherapy. In February my father-in-law was diagnosed with Thyroid cancer. In March he died. So when I started having blurry vision, I joked that I’d cried myself blind. … Continue reading Keratoconus – inspiring art, my story by Kirsten, USA
Our friend Isaac Porter, MD - Raleigh, NC, USA created this special video especially for Keratoconus GB members to enjoy and share, with information about keratoconus. The vlog episode was filmed and created specifically for this blog. Isaac is an expert in eye care and corneal issues including keratoconus, and is a fellowship trained cornea and refractive surgeon. Dr. … Continue reading Keratoconus video – learn about keratoconus