Hydrops... Steph Tweedie shares her experience: Top photo - 21st December 2019 Middle photo - 26th December 2019 Bottom photo - 3rd January 2020 What Is Hydrops? Corneal hydrops is an uncommon complication seen in people with advanced keratoconus or other corneal ectatic disorders, and is characterised by stromal edema due to leakage of aqueous humor through a tear … Continue reading HYDROPS – a rare keratoconus complication

  MATTHEW VINCENT'S STORY "Just an update... 3 weeks ago, both eyes had CXL epi-off at Moorfields Eye Hospital." CXL or collagen cross linking is a relatively new procedure aimed at halting the progression of keratoconus, speeding up the ageing process and thus avoiding a corneal graft. Corneal cross-linking (CXL) is a treatment for patients … Continue reading A CXL EXPERIENCE AT MOORFIELDS LONDON

Rae Lovejoy April 2019 Further to a full graft, and a cataract op, my left eye now needed wide diameter CXL (collagen cross linking) to preserve the tissue and stabilise the graft. Here's my experience at one of the UK's finest eye hospitals, Moorfields in London.   Above: Wide diameter CXL at Moorfields After almost … Continue reading CONTINUNG THE KERATOCONUS JOURNEY – CXL AT MOORFIELDS

We get asked a lot of questions by people with keratoconus or their family members with regards to the NHS- how to use it, when to ask questions, how to get the right treatment so here is a guide put together to help you.     GETTING AN NHS REFERRAL IN ENGLAND What is it?  … Continue reading NHS IN THE UK AND KERATOCONUS

Individualized corneal cross-linking, in which UV fluence is adapted to individual stromal thickness, may be an option for stabilizing keratoconus in patients with thin corneas, according to 1-year study results. “Two years ago, our group at the ELZA Eye Institute in Zurich published a nomogram for adapting UV intensity to individual corneal thickness. Rather than … Continue reading NEW CXL STUDY RESULTS ARE PROMISING

Mark Wakefield‎ shares his recent keratoconus graft story. Is a full on replacement graft your only option when an aged graft starts to fail? Maybe not. I thought I would share my recent experience with you in case anyone else was facing the same issue. If you are then my treatment may be something you … Continue reading A STITCH JUST IN TIME…

KERATOCONUS AND ME by Ashley Winter   We are delighted to announce that Ash Winter, a long time friend of KCGB has published his first book detailing his life with the eye condition keratoconus. Ash is an inspiration not only to those with KC but to anyone with a life affecting condition - his message is … Continue reading UNSTOPPABLE ASH PUBLISHES BOOK ABOUT HIS KERATOCONUS ADVENTURE

Meibomian gland dysfunction is an oil deficiency in the tears caused by dysfunction of the oily glands known as the Meibomian glands. It is very common condition and a feature of many dry eye syndromes. MGD is often experienced by those with keratoconus, particularly if they wear contact lenses. MGD is also a major cause … Continue reading OUCH! MBD AND DRY EYE – CAUSES AND TREATMENTS