Lots has been going on in the world of keratoconus in the past few months. Collagen crosslinking, still an investigational treatment in the United States, was first performed in Europe in the late 1990s for the treatment of ectatic corneal conditions. The treatment combines riboflavin and ultraviolet A (UVA) light, allowing the formation of reactive oxygen … Continue reading Latest CXL cross linking for keratoconus developments October 2014
Rhonda’s story I'd like to share some of my recent events. I am from Massachusetts, USA. As a member of KeratoconusGB I have been posting my updates there, and now I am sharing my story with the wider world in the hope that it can helps fellow keratoconus folk. If I had Keratoconus 25 years … Continue reading Keratoconus – my story by Rhonda, USA
Hello - I am a KC'er since 1998 - a long time. I started the first support group in India. This is just an outpouring from a KC'er in his day to day life when not wearing lenses. This is the outcome when an incident happened to me during my off lens time in the kitchen.... … Continue reading Keratoconus- my story as a poem by Shiv, India
New to Keratoconus? Finding the right contact lens fitter... Living in the USA with keratoconus? If you are newly diagnosed, or have been diagnosed for a while, one of the most important tasks is to find the right contact lens fitter for you. Keratoconus is quite rare (1 in 500 have it) , not every … Continue reading keratoconus- finding the right contact lens fitter in the USA
Normality or Keratoconus? Why not both? Most of the time I like to pretend that I am normal but a few facts give me away: I have never met anyone with eyesight worse than mine I can drive a car but will rarely do so after dark I know from memory the first 3 lines … Continue reading Keratoconus- my story by Clare, UK, CXL & more
A question we are often asked on our Facebook page and group and on Twitter- can I travel with keratoconus? Can I fly? Commercial airline cabins expose passengers to reduced atmospheric pressure, reduced oxygen availability, and dry air. However if you are careful there is no reason at why you cannot travel. Contact lens wearers … Continue reading Keratoconus – can I fly with contact lenses?
Hello everyone, My name is Leonie, I’m a 23 year old Dutch lady and I have Keratoconus. They found out I have this eye disease when I was about 12. I had been wearing sclerals for almost 3 years, when I was 15 I had to get my first corneal transplant or graft. When I … Continue reading Keratoconus- my story by Leonie
Great news folks- KCGB member Amy Musto is doing a skydive to raise funds for the only UK Keratoconus charity http://www.keratoconus-group.org.uk/ In February 2013 Amy was diagnosed with Keratoconus after noticing a significant change in her eyesight over a short period of time. Luckily the condition had been caught before it became too aggressive and Amy … Continue reading Keratoconus SKY DIVE! Raising funds for http://www.keratoconus-group.org.uk/