New to Keratoconus? Finding the right contact lens fitter... Living in the USA with keratoconus? If you are newly diagnosed, or have been diagnosed for a while, one of the most important tasks is to find the right contact lens fitter for you. Keratoconus is quite rare (1 in 500 have it) , not every … Continue reading keratoconus- finding the right contact lens fitter in the USA
Hello everyone, My name is Leonie, I’m a 23 year old Dutch lady and I have Keratoconus. They found out I have this eye disease when I was about 12. I had been wearing sclerals for almost 3 years, when I was 15 I had to get my first corneal transplant or graft. When I … Continue reading Keratoconus- my story by Leonie
Great news folks- KCGB member Amy Musto is doing a skydive to raise funds for the only UK Keratoconus charity http://www.keratoconus-group.org.uk/ In February 2013 Amy was diagnosed with Keratoconus after noticing a significant change in her eyesight over a short period of time. Luckily the condition had been caught before it became too aggressive and Amy … Continue reading Keratoconus SKY DIVE! Raising funds for http://www.keratoconus-group.org.uk/
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Our friend Isaac Porter, MD - Raleigh, NC, USA created this special video especially for Keratoconus GB members to enjoy and share, with information about keratoconus. The vlog episode was filmed and created specifically for this blog. Isaac is an expert in eye care and corneal issues including keratoconus, and is a fellowship trained cornea and refractive surgeon. Dr. … Continue reading Keratoconus video – learn about keratoconus
Updates from the 9th International Congress of Corneal Cross-Linking by Sumit (Sam) Garg MD. The 9th International Congress of Corneal Cross-Linking (CXL) was held recently in Dublin, Eire. This meeting brought together many of the worlds’ leaders in eye surgery. The goal of CXL is to strengthen the weakened cornea to prevent further destabilization and … Continue reading Latest collagen cross linking news from recent Congress 2014
Hitting a bum note My experience with keratoconus started on a sour note. I was playing my trumpet during music class, and saw the note in a different place than everyone else. Our notoriously temperamental music teacher let me know about it by flinging his baton at me, narrowly missing, and … Continue reading Keratoconus my story by Scott Honeyman, Canada
Hello I am Simba from South Africa, I am 21 and this is my keratoconus story. That's me with the eye patch in the photo (left) I started wearing hard contact lenses when I was in Grade 9 (15 years old) and the reason my optometrist gave was that my cornea was ‘rigid’. I … Continue reading Keratoconus my story – by Simba, 21