On the Slopes with Ash Winter

By Ash Winter I was diagnosed with Keratoconus in 2010. It’s a horrible eye disease and I do see it as a disability but I try not to let it stop me living my life to the full. I also feel like my life has changed since then, maybe it’s my Army background but something … Continue reading On the Slopes with Ash Winter

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Keratoconus – my story by Rhonda, USA

Rhonda’s story I'd like to share some of my recent events. I am from Massachusetts, USA. As a member of KeratoconusGB I have been posting my updates there, and now I am sharing my story with the wider world in the hope that it can helps fellow keratoconus folk.   If I had Keratoconus 25 years … Continue reading Keratoconus – my story by Rhonda, USA

Keratoconus- my story as a poem by Shiv, India

Hello - I am a KC'er since 1998 - a long time. I started the first support group in India. This is just an outpouring from a KC'er in his day to day life when not wearing lenses.  This is the outcome when an incident happened to me during my off lens time in the kitchen.... … Continue reading Keratoconus- my story as a poem by Shiv, India

keratoconus- finding the right contact lens fitter in the USA

New to Keratoconus? Finding the right contact lens fitter... Living in the USA with keratoconus?  If you are newly diagnosed, or have been diagnosed for a while, one of the most important tasks is to find the right contact lens fitter for you. Keratoconus is quite  rare  (1 in 500 have it) , not every … Continue reading keratoconus- finding the right contact lens fitter in the USA

Keratoconus- my story by Clare, UK, CXL & more

Normality or Keratoconus? Why not both? Most of the time I like to pretend that I am normal but a few facts give me away: I have never met anyone with eyesight worse than mine I can drive a car but will rarely do so after dark I know from memory the first 3 lines … Continue reading Keratoconus- my story by Clare, UK, CXL & more

Keratoconus – can I fly with contact lenses?

A question we are often asked on our Facebook page and group and on Twitter- can I travel with keratoconus? Can I fly? Commercial airline cabins expose passengers to reduced atmospheric pressure, reduced oxygen availability, and dry air. However if you are careful there is no reason at why you cannot travel. Contact lens wearers … Continue reading Keratoconus – can I fly with contact lenses?

Keratoconus- my story by Leonie

Hello everyone, My name is Leonie, I’m a 23 year old Dutch lady and I have Keratoconus. They found out I have this eye disease when I was about 12. I had been wearing sclerals for almost 3 years, when I was 15 I had to get my first corneal transplant or graft. When I … Continue reading Keratoconus- my story by Leonie