Hello - I am a KC'er since 1998 - a long time. I started the first support group in India. This is just an outpouring from a KC'er in his day to day life when not wearing lenses. This is the outcome when an incident happened to me during my off lens time in the kitchen.... … Continue reading Keratoconus- my story as a poem by Shiv, India
New to Keratoconus? Finding the right contact lens fitter... Living in the USA with keratoconus? If you are newly diagnosed, or have been diagnosed for a while, one of the most important tasks is to find the right contact lens fitter for you. Keratoconus is quite rare (1 in 500 have it) , not every … Continue reading keratoconus- finding the right contact lens fitter in the USA
Normality or Keratoconus? Why not both? Most of the time I like to pretend that I am normal but a few facts give me away: I have never met anyone with eyesight worse than mine I can drive a car but will rarely do so after dark I know from memory the first 3 lines … Continue reading Keratoconus- my story by Clare, UK, CXL & more
A question we are often asked on our Facebook page and group and on Twitter- can I travel with keratoconus? Can I fly? Commercial airline cabins expose passengers to reduced atmospheric pressure, reduced oxygen availability, and dry air. However if you are careful there is no reason at why you cannot travel. Contact lens wearers … Continue reading Keratoconus – can I fly with contact lenses?
Great news folks- KCGB member Amy Musto is doing a skydive to raise funds for the only UK Keratoconus charity http://www.keratoconus-group.org.uk/ In February 2013 Amy was diagnosed with Keratoconus after noticing a significant change in her eyesight over a short period of time. Luckily the condition had been caught before it became too aggressive and Amy … Continue reading Keratoconus SKY DIVE! Raising funds for http://www.keratoconus-group.org.uk/
Intacs Intacs is the trademark name for micro-thin implantable intracorneal ring inserts - a procedure used to improve mild myopia, also studied to determine its usefulness in reducing hyperopia, astigmatism and helping improve vision for those with keratoconus. They are an alternative to laser surgery, and are tiny, crescent-shaped prescription devices made of plastic polymer … Continue reading What are Intacs for keratoconus?
2012 was shaping up to be a hard year.... 'Crying myself blind' In January my mom was diagnosed with breast cancer and underwent a mastectomy, then started chemotherapy. In February my father-in-law was diagnosed with Thyroid cancer. In March he died. So when I started having blurry vision, I joked that I’d cried myself blind. … Continue reading Keratoconus – inspiring art, my story by Kirsten, USA
We get asked this a lot. How do you explain what it is like to have 'keratoconus' once people have realised that there is something wrong with your eyes? And how do you answer questions like 'why don't you just wear glasses?' or "why don't you just have LASIK?' I wish I had a £1 … Continue reading What is it like to have keratoconus?