Christmas message to all the KCGB #keratoconus family

Hello everyone This blog is just over a year old- and what a year it has been. So we would like to take this opportunity to thank everyone who has contributed to the blog over the past year with their inspiring keratoconus stories. It is so important to share real experiences of kc, corneal grafts, … Continue reading Christmas message to all the KCGB #keratoconus family

Night Routine & Makeup

Damaged Brown Eyes

Every night now, before bed time, I have a ritual of raking out my lens, cleaning them, then placing them in the solution thing— whatever its called. Then, BAM… my almost perfect vision is gone 😦 I proceed to remove my makeup, wash face, etc.

Its so difficult not being able to see that well… which means I will be getting glasses (!!!) again, just so I can see at night. Super frustrating!

Oh and wearing makeup… I wear eyeliner on my lower water line and it always gets on the lens… very difficult to take off and sometimes the black marks just stay on my lens. 😦 Even wearing face cream can be an issue… :((

But at least I can see a lot better. Feels so good– after repeatedly raping my eyes attempting to get the lens in– to see. Everything is so clear and vivid. Like HDTV……

View original post 1 more word


Playing The Hand I Was Dealt



Image Source:

I don’t like to fly.  I get extreme anxiety and have had full-blown panic attacks at every elevation imaginable, even after taking a fear of flying course nearly 20 years ago.  So, when I went to see my optometrist a couple of weeks ago to find out why my vision was worse and more ghosted in my right eye, I had that fear-of-flying feeling the whole time: being completely out of control and waiting to crash and burn at any second. After all, if I’m not holding that plane up, then who is?

As usual, an assistant had me read the Snellen chart—a useless tool for assessing the visual acuity (VA) in anyone with keratoconus (KC).  I just wanted to know how much my VA had changed in my right eye.  Well, this woman didn’t want to tell me, but I do know that the VA…

View original post 1,097 more words

A Girl’s Gotta Hope

La Vie Bobo

Picture a Monet. Like this one:

Claude Monet, Saint-Georges majeur au crépuscule.jpg

Source: Wikipedia

This is what I see. Every day. But only out of one eye.

My right eye is normal. Blue, slightly nearsighted, healthy. My left eye, however, is waaaaaayyyy different.

My eye history is cringe-worthy. I was born with a cataract, had an artificial lens put in, got hit with a playground glider (yes, in the eye), had said artificial lens removed, and wore a patch for a good chunk of my pre-school years (Arg!).

Then I got glaucoma as a pre-teen. I like to think that this combo of cataract+glaucoma – both old-lady diseases – is a sign of my incredible wisdom-beyond-my-years. The jury’s still out on that one.

And most incredible? Everything – natural disaster, injury, damage, the works – has happened to only my left eye.

This is where Monet comes in. Even with the highest-level contact in my left…

View original post 547 more words

Status Update: Shock and Awe

La Vie Bobo

Here’s the headline: surgery was incredibly successful. Like, better than anyone had hoped.

This has been a pretty intense experience, especially the days and weeks leading up to the surgery itself (catch up on the backstory). it was a lot of expectation and hope and fear from several years all layered on top of each other.

I felt emotionally off-kilter for the past couple of weeks. I figured some of it was just being unglued about the whole losing-my-cornea thing. But I think it was also the stress of facing a very positive possible outcome after so many years, and being afraid to hope.

So surgery was on Monday. It’s a weird feeling to lay there in your tissue paper hospital gown waiting to be put to sleep and not knowing what life will be like when you wake up. If you’ve never experienced anesthesia, it’s wild. One…

View original post 432 more words

Reflections on my 6 Year Journey

My KC Journey

Well, seeing as it is (nearly?) six years since that fateful day of my diagnosis with keratoconus, I thought it would be time to share some reflections on the time since that day.

I feel I am more accepting of help from others.
I do not know where I got this from but I have this stubborn drive to be independent and to be able to do things myself. I have learnt through the years that it isn’t always possible when you live with keratoconus. Without the support of my optometrist, my family and others with keratoconus,  I would have been lost.

Being Able to Achieve
It took me several lenses, a whole lot of money and quite a few meltdowns but I have now learnt to wear two pairs of lenses, one pair of RGP lenses and a pair of soft lenses. I am also able to manage the…

View original post 159 more words