Keratoconus- my story by Leonie

Hello everyone, My name is Leonie, I’m a 23 year old Dutch lady and I have Keratoconus. They found out I have this eye disease when I was about 12. I had been wearing sclerals for almost 3 years, when I was 15 I had to get my first corneal transplant or graft. When I … Continue reading Keratoconus- my story by Leonie

Keratoconus SKY DIVE! Raising funds for

Great news folks- KCGB member Amy Musto is doing a skydive to raise funds for the only UK Keratoconus charity In February 2013 Amy was diagnosed with Keratoconus after noticing a significant change in her eyesight over a short period of time. Luckily the condition had been caught before it became too aggressive and Amy … Continue reading Keratoconus SKY DIVE! Raising funds for

What are Intacs for keratoconus?

Intacs Intacs is the trademark name for micro-thin implantable intracorneal ring inserts - a procedure used to improve mild myopia, also studied to determine its usefulness in reducing hyperopia, astigmatism and helping improve vision for those with keratoconus. They are an alternative to laser surgery, and are tiny, crescent-shaped prescription devices made of plastic polymer … Continue reading What are Intacs for keratoconus?

Keratoconus – inspiring art, my story by Kirsten, USA

2012 was shaping up to be a hard year.... 'Crying myself blind' In January my mom was diagnosed with breast cancer and underwent a mastectomy, then started chemotherapy. In February my father-in-law was diagnosed with Thyroid cancer. In March he died. So when I started having blurry vision, I joked that I’d cried myself blind. … Continue reading Keratoconus – inspiring art, my story by Kirsten, USA

Keratoconus video – learn about keratoconus

Our friend Isaac Porter, MD - Raleigh, NC, USA created this special video especially for Keratoconus GB members to enjoy and share, with information about keratoconus. The vlog  episode was filmed and created specifically for this blog.  Isaac is an expert in eye care and corneal issues including keratoconus, and is a fellowship trained cornea and refractive surgeon. Dr. … Continue reading Keratoconus video – learn about keratoconus


KERATOCONUS should not stop you living your life and doing whatever you want to do! Here is a list of 50 things that our amazing KeratoconusGB members from all over the world have achieved whilst having keratoconus, wearing lenses, pre and post corneal graft: 1. Horse riding safari in South Africa 2. Canyoning in Scotland … Continue reading KERATOCONUS – LIVING YOUR LIFE TO THE FULL

Keratoconus my story by Christian, Malaysia

Hi, my Name is Christian. and I'm new here. I am male, 29 years old and I live in Malaysia. Here is my keratoconus story: As far as I can remember, I started wearing glasses at the age of 14. back then it was only L:0.5D, R:0.25D.(astigmatism) with no far or nearsighted, we all  thought that it … Continue reading Keratoconus my story by Christian, Malaysia