I had never expected to be writing this at any point of my long KC journey but I am so here goes.
It’s the 2nd April 2013, just short of the 5 month post-op point and up until now everything is going extremely well apart from very minor thing’s like dry-eye. My dry-eye has been a lot worse at the weekend and as usual had been moaning about it being really bad to anyone who would listen. Today is very different I was up early as usual as I couldn’t sleep and my eye wasn’t just running like before it was pouring down my face, it was extremely red like it had been at the point just after surgery. Then came shortly after what I can only describe at the most horrific pain I have ever felt in my life.
By this point I know deep down something is very wrong so I call the emergency eye clinic at the hospital and explain everything, I’m told to come in. I arrive at the hospital fully expecting a long wait as it’s an emergency clinic but to my surprise I’m taken straight away by the on-call Dr. My eye was examined very thoroughly and she said she had to pop next door to check something with my Dr. Next thing I know he has come through to see me and he also has a look. I could see the look on his face and I knew it wasn’t going to be good news. He then said the words that the graft was showing early signs of rejection.
You start thinking you must have done something wrong but the truth is your immune system for whatever reason has suddenly decided it wants rid of this foreign body. He did re-assure me that the fact we are treating this immediately would mean that it would be fine.
I think the minute most people here the word “rejection” its almost over already when in fact this couldn’t be further from the truth. Signs of a graft rejection are not the same as a full blown rejection as this actually rarely results in this if you have been given the right treatment. At this point I had an injection in the eye, not the most pleasant experience but I didn’t care much at this point. I also was given yet more drops and oral steroids to take over a two week period. I went back a week later to be check and the graft seemed to be responding well so I was more than happy in myself that it would be alright.
Another week passes and I’m back again to see my Dr and I get the news I was hoping for that the graft was totally fine and was super clear and to be told this today was brilliant as it falls on the 5 month post-op date. I know they say everything happens for a reason and some things in life do test us. It certainly does put other things into perspective and somebody else is always worse off than you.
#Gift of Sight
Ending on a brighter note I had decided I wanted to remember my donor in some way and not to forget to be thankful as without people donating organs we wouldn’t be getting the 2nd chance of better vision. I had this tattoo done showing the sutures and the operation date below. I’m glad I got it done but it wasn’t the nicest thing I have ever experienced, anyone who says they are not painful to have done is fibbing.
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