Since diagnosis, I have had so many appointments with eye specialists, optometrists, corneo plastic surgens, contact lens fitting, cornea scans that it would fill a whole book to go through each one in any detail.

One of my worst memories of these last two years was in March 2013, we went to Butlin’s in Minehead as part of my mother in laws Birthday celebration’s, I was already suffering frontal headaches the week leading up to this, but thought I could handle it.

I remember the first night there we went to a bar they call Centre Stage on the Butlin’s camp, it was dark with the only lights being those neon type lights that lit up the bar, and all around the room, as well as having pillar supports dotted around also completely lit in neon.

I walked up to the bar and ordered a drink for myself and fiancee…