Keratoconus my story by Kirsty, UK

After a normal visit to my optician I was told that I would need to go to the Eye Hospital to be referred for further investigations and this is where I was first diagnosed with keratoconus at the age off 22.

I was told I would need to wear soft contacts in both my eyes as they both had the disease. It was quite a wait as this was on the NHS but I can’t fault the hospital I was being treated at.

I carried on fine with my soft lens for about four years and had regular check ups at the hospital until one day I just couldn’t tolerate them in my eye anymore and this is where I was referred back to hard contact lenses.

I found this all quite a different challenge for me dealing with havjng kc and not being able to see properly became quite hard for me when I was driving at night I started seeing ghosting and doubles of stuff and other headlights would dazzle my eyes and it was quite a scary experience.

While waiting for my hard contacts to be made I developed hydrops in my left eye which had become very advanced and had a lot of scarring and I was then put on the waiting list for a corneal transplant. Having hydrops was extremely painful and caused me to have a ‘white mist’ over the front of my eye. It is very hard to explain as I couldn’t really see very well out of that eye and it is very blurry on the best of days without any contacts or glasses.

220px-Kc_simulation

My better right eye has now progressed from a -1 to a -7.5 from October 2013 and I’m now waiting for cross linking to be done at the Western Eye Hospital later on this year but as I developed hydrops my left eye became a top priority to get the graft done as soon as possible when originally my surgeon wanted the cross linking done first to establish it.

Despite having keratoconus I have still been able to work a full time job and drive up until January this year and do all daily tasks from washing and cleaning and going on holiday. I do have my down days where I get very upset and angry I have his disease but I look on the bright side this isn’t a thing I will have forever in my eyes.

I’m now looking to my operation in the next couple of weeks and I hope that the outcome from that will gradually improve my vision so I can regain driving and carry on have a normal life.

Kirsty Boylan, UK

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