What are Intacs for keratoconus?

Intacs Intacs is the trademark name for micro-thin implantable intracorneal ring inserts - a procedure used to improve mild myopia, also studied to determine its usefulness in reducing hyperopia, astigmatism and helping improve vision for those with keratoconus. They are an alternative to laser surgery, and are tiny, crescent-shaped prescription devices made of plastic polymer … Continue reading What are Intacs for keratoconus?

Memoirs of an English Wolf

vision through words

by Gavin Jones

Number 22 – In the Studio

I sat in the corner of the studio and began to draw. I used oil pastels because they would smudge and I could scratch them. The colors could smear into each other. I could attempt to create a facsimile of the world my eye saw. Drawing could become a testament to the form and colors of blindness.

Before the year was out I would be having a transplant which – hopefully – would restore my sight. Drawing this different vision was pretty important to me, although I had long since given up the dream of following a career as a visual artist. This sight was not, in itself a disability. It was an ability unique to me. I had a vision impossible to be shared with others. That is the thing with much that is known as blindness: it is anything…

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18 MONTHS AFTER CXL & THE MONKEYS SCRATCHING THEIR HEADS

Playing The Hand I Was Dealt

Image Source: http://www.imoderate.com

A decade or so before my keratoconus showed up, I recall seeing my former internist back home when I became so horrible ill from what I now know was classical Ehlers-Danlos syndrome.  I had lost 30 lbs and was well below 100 due to throwing up from the pain all day and had this gaunt face with dark under eye circles when my doctor walked into the exam room and said to the half-dead person in front of him, “What happened to you?” in a very concerned tone.  My internist was a smart and good doctor, but he was scratching his head like a monkey over what could possibly have made a fit and healthy young woman turn into a zombie seemingly overnight.  In the end, he ordered blood work and sent me a copy with a referral to a rheumatologist.  My doctor hand wrote the following…

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Keratoconus – inspiring art, my story by Kirsten, USA

2012 was shaping up to be a hard year.... 'Crying myself blind' In January my mom was diagnosed with breast cancer and underwent a mastectomy, then started chemotherapy. In February my father-in-law was diagnosed with Thyroid cancer. In March he died. So when I started having blurry vision, I joked that I’d cried myself blind. … Continue reading Keratoconus – inspiring art, my story by Kirsten, USA

What is it like to have keratoconus?

We get asked this a lot. How do you explain what it is like to have 'keratoconus' once people have realised that there is something wrong with your eyes? And how do you answer questions like 'why don't you just wear glasses?' or "why don't you just have LASIK?' I wish I had a £1 … Continue reading What is it like to have keratoconus?

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great post Wendy

pinkglitter1974's Blog

ImageImageImageI’d like to share a little about my on going constant battle with OCD  (Obsessive Compulsive Disorder) & how it has become worse over the years as my eyes have changed.  I think it started around 1994 when I first began to notice my eyes being a little blurry.  Well I say that I noticed it was more like other people constantly telling me I needed glasses and this annoyed me so much I chose to ignore it.  Eventually by 1995 I decided to bite the bullet & go to a high street optician & get glasses for using at work on the computer etc…The glasses never felt right & made me feel very dizzy & did little for my vison so I went back twice but they said they couldn’t be improved so I stopped wearing them which annoyed my parents no end as they had paid for them. 

Its now 1999…

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Keratoconus video – learn about keratoconus

Our friend Isaac Porter, MD - Raleigh, NC, USA created this special video especially for Keratoconus GB members to enjoy and share, with information about keratoconus. The vlog  episode was filmed and created specifically for this blog.  Isaac is an expert in eye care and corneal issues including keratoconus, and is a fellowship trained cornea and refractive surgeon. Dr. … Continue reading Keratoconus video – learn about keratoconus