Keratoconus my story by Christian, Malaysia

Hi, my Name is Christian. and I'm new here. I am male, 29 years old and I live in Malaysia. Here is my keratoconus story: As far as I can remember, I started wearing glasses at the age of 14. back then it was only L:0.5D, R:0.25D.(astigmatism) with no far or nearsighted, we all  thought that it … Continue reading Keratoconus my story by Christian, Malaysia

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Back to the Drawing Board

Anice Barbosa

So the day finally came. I have been obsessing over today for about a month now. I couldn’t eat, drink or function without thinking about it. Last time I was in that exam chair, it sure sounded like today would be the day that this would end, at least temporarily.

I woke up in a good mood and made my way to the doctor’s office. I prayed on the way and felt positive. I was preparing myself for both possibilities, but focusing on the positive one. I sat in the exam chair and a young lady, whom I’ve never met before, sat across from me and tried to get the contact in. I don’t know if it was my nervousness, or her lack of experience with Keratoconus fittings, but she couldn’t manage to get the lens in. I kept cool and didn’t say a word. Even though every time she…

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Keratoconus & contact lenses by Prashanth Chander, India

Contact lenses So, I have been using my Rose K lenses for about 2 weeks now. I must say, they are incredibly irritating to put on and to remove. That being said, 2 weeks down the line the whole process has become a lot easier and better. At first I could feel the lenses in my … Continue reading Keratoconus & contact lenses by Prashanth Chander, India

Find Your Strength…

Anice Barbosa

Because some days are simply harder than others to get through. Find something in you to push you forward and get through the day…

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An old co-worker gave me this card before my suture adjustment and helped me shoo away the negativity. I keep it where I can always find. I hope you take a second to really read it and think about the message.

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Update! Six months since graft (right eye) and Corneal Collagen Cross-Linking (left eye)

DALK Cornea Transplant

Hi everyone.

Firstly, apologies for the ridiculous lack of updates over the last few months. I would love to say it was because something dramatic and exciting had happened, but unfortunately it just comes down to a combination of overindulging on alcohol over the festive period, and pure laziness! However, there have been a few developments since I last posted here, so I thought now was a good time to let you know how things are progressing. There have actually been developments with regards to both eyes (I was diagnosed with KC in both eyes when I was 16), but I’ll start with my right eye which is the eye I had the graft in.

So it’s now been exactly six months since I had the graft in my right eye, and everything continues to go as well (if not better) than I could have hoped. I had an appointment…

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Number 22

Memoirs of an English Wolf

I sat in the corner of the studio and began to draw. I used oil pastels because they would smudge and I could scratch them. The colours could smear into each other. I could attempt to create a facsimile of the world my eye saw. Drawing could become a testament to the form and colours of blindness.

Before the year was out I would be having a transplant which – hopefully – would restore my sight. Drawing this different vision was pretty important to me, although I had long since given up the dream of following a career as a visual artist. This sight was not, in itself a disability. It was an ability unique to me. I had a vision impossible to be shared with others. That is the thing with much that is known as blindness: it is anything but the inability to see. Sure, I couldn’t even…

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Keratoconus my story by Janna from Australia

My journey with Keratoconus by Janna Seysener, Australia I never had a huge problem with vision as a child but Mum says I was CONSTANTLY rubbing my eyes with my knuckles. I had a vision test at about 10 or so just to check for any issues because Mum has astigmatism and associated myopia and … Continue reading Keratoconus my story by Janna from Australia