2013 in review – keratoconus blog stats

The WordPress.com stats helper monkeys prepared a 2013 annual report for this blog. Here's an excerpt: The concert hall at the Sydney Opera House holds 2,700 people. This blog was viewed about 27,000 times in 2013. If it were a concert at Sydney Opera House, it would take about 10 sold-out performances for that many … Continue reading 2013 in review – keratoconus blog stats


Keratoconus my story by Scott Honeyman, Canada

        Hitting a bum note My experience with keratoconus started on a sour note. I was playing my trumpet during music class, and saw the note in a different place than everyone else. Our notoriously temperamental music teacher let me know about it by flinging his baton at me, narrowly missing, and … Continue reading Keratoconus my story by Scott Honeyman, Canada

Christmas message to all the KCGB #keratoconus family

Hello everyone This blog is just over a year old- and what a year it has been. So we would like to take this opportunity to thank everyone who has contributed to the blog over the past year with their inspiring keratoconus stories. It is so important to share real experiences of kc, corneal grafts, … Continue reading Christmas message to all the KCGB #keratoconus family

Night Routine & Makeup

Damaged Brown Eyes

Every night now, before bed time, I have a ritual of raking out my lens, cleaning them, then placing them in the solution thing— whatever its called. Then, BAM… my almost perfect vision is gone 😦 I proceed to remove my makeup, wash face, etc.

Its so difficult not being able to see that well… which means I will be getting glasses (!!!) again, just so I can see at night. Super frustrating!

Oh and wearing makeup… I wear eyeliner on my lower water line and it always gets on the lens… very difficult to take off and sometimes the black marks just stay on my lens. 😦 Even wearing face cream can be an issue… :((

But at least I can see a lot better. Feels so good– after repeatedly raping my eyes attempting to get the lens in– to see. Everything is so clear and vivid. Like HDTV……

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Playing The Hand I Was Dealt



Image Source: http://www.seatmaestro.com

I don’t like to fly.  I get extreme anxiety and have had full-blown panic attacks at every elevation imaginable, even after taking a fear of flying course nearly 20 years ago.  So, when I went to see my optometrist a couple of weeks ago to find out why my vision was worse and more ghosted in my right eye, I had that fear-of-flying feeling the whole time: being completely out of control and waiting to crash and burn at any second. After all, if I’m not holding that plane up, then who is?

As usual, an assistant had me read the Snellen chart—a useless tool for assessing the visual acuity (VA) in anyone with keratoconus (KC).  I just wanted to know how much my VA had changed in my right eye.  Well, this woman didn’t want to tell me, but I do know that the VA…

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Keratoconus survey- age of diagnosis

How old were you when you were first diagnosed with Keratoconus? Early diagnosis is key, and KC is thought to be a childhood disease. In order for treatments such ac cxl collagen cross linking to be effective, early diagnosis is crucial. New techniques and greater awareness  of the disease make earlier diagnosis more common, which is … Continue reading Keratoconus survey- age of diagnosis