2013 in review – keratoconus blog stats

The WordPress.com stats helper monkeys prepared a 2013 annual report for this blog. Here's an excerpt: The concert hall at the Sydney Opera House holds 2,700 people. This blog was viewed about 27,000 times in 2013. If it were a concert at Sydney Opera House, it would take about 10 sold-out performances for that many … Continue reading 2013 in review – keratoconus blog stats

Keratoconus my story by Scott Honeyman, Canada

        Hitting a bum note My experience with keratoconus started on a sour note. I was playing my trumpet during music class, and saw the note in a different place than everyone else. Our notoriously temperamental music teacher let me know about it by flinging his baton at me, narrowly missing, and … Continue reading Keratoconus my story by Scott Honeyman, Canada

Christmas message to all the KCGB #keratoconus family

Hello everyone This blog is just over a year old- and what a year it has been. So we would like to take this opportunity to thank everyone who has contributed to the blog over the past year with their inspiring keratoconus stories. It is so important to share real experiences of kc, corneal grafts, … Continue reading Christmas message to all the KCGB #keratoconus family

How Bad Does It Get?

Great post

A place for my thoughts

Why don’t you get glasses?
What about contact lenses? I’m sure it will help.
Have you considered LASIK?

These are the questions I get from people who aren’t familiar with Keratoconus. Sometimes it’s hard to answer the same questions over and over and over and not snap. I once told a young woman who had asked me all the questions above “Don’t you think my doctors have thought of that?” I immediately bit my tongue and apologized. She did nothing to deserve my impoliteness.

Just last week I was talking to a friend who asked me something no one else has: “How Bad Does It Get?” I sat in quiet and thought about it.

Pretty bad. Horrible some days really.

I get depressed about it. I cry alone and once in a while, when I get really desperate, I cry in public. I don’t care who is around…

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Night Routine & Makeup

Damaged Brown Eyes

Every night now, before bed time, I have a ritual of raking out my lens, cleaning them, then placing them in the solution thing— whatever its called. Then, BAM… my almost perfect vision is gone 😦 I proceed to remove my makeup, wash face, etc.

Its so difficult not being able to see that well… which means I will be getting glasses (!!!) again, just so I can see at night. Super frustrating!

Oh and wearing makeup… I wear eyeliner on my lower water line and it always gets on the lens… very difficult to take off and sometimes the black marks just stay on my lens. 😦 Even wearing face cream can be an issue… :((

But at least I can see a lot better. Feels so good– after repeatedly raping my eyes attempting to get the lens in– to see. Everything is so clear and vivid. Like HDTV……

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Playing The Hand I Was Dealt



Image Source: http://www.seatmaestro.com

I don’t like to fly.  I get extreme anxiety and have had full-blown panic attacks at every elevation imaginable, even after taking a fear of flying course nearly 20 years ago.  So, when I went to see my optometrist a couple of weeks ago to find out why my vision was worse and more ghosted in my right eye, I had that fear-of-flying feeling the whole time: being completely out of control and waiting to crash and burn at any second. After all, if I’m not holding that plane up, then who is?

As usual, an assistant had me read the Snellen chart—a useless tool for assessing the visual acuity (VA) in anyone with keratoconus (KC).  I just wanted to know how much my VA had changed in my right eye.  Well, this woman didn’t want to tell me, but I do know that the VA…

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A Date With Keratoconus

Great post #kcfamily

A place for my thoughts

For much of the time I’ve had Keratoconus, I’ve been fortunate enough to have a partner who knew me before things got too hard to handle. After my first cornea transplant, I found myself single and ready to date again.

I went on a date with an old friend. I didn’t give much thought on whether to talk about my condition. I try not to let it define me or the things I can do. As we sat down and watched the sun set by the beach, I thought to talk about having Keratoconus because my mind was racing, thinking about driving back home after dark. However, I didn’t bring it up. Instead, I left early, beat the sunset and got home before dark. The day had been so good that I figured bringing it up would ruin everything. Little did I realize that taking off like that was likely…

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Keratoconus survey- age of diagnosis

How old were you when you were first diagnosed with Keratoconus? Early diagnosis is key, and KC is thought to be a childhood disease. In order for treatments such ac cxl collagen cross linking to be effective, early diagnosis is crucial. New techniques and greater awareness  of the disease make earlier diagnosis more common, which is … Continue reading Keratoconus survey- age of diagnosis