Keratoconus, my story by Marco

I had been mailing Rae from the Keratoconus GB Facebook Page to thank them for all the help and info they and the community had provided me with over the last months since being diagnosed with keratoconus. In early 2012 I got diagnosed with Keratoconus, in my case, there seems to be 2 things going … Continue reading Keratoconus, my story by Marco


What is CXL? Collagen cross linking? A guide

Cross-linking is a medical procedure that combines the use of ultra-violet light and riboflavin eye drops. Corneal cross-linking (CXL) is an in-office eye procedure that strengthens the cornea if it's been weakened by keratoconus, other corneal disease, or (rarely) a complication of LASIK surgery. Alternative and brand names for the procedure include corneal cross-linking, corneal … Continue reading What is CXL? Collagen cross linking? A guide

Blogs about keratoconus for you to read

Keratoconus can seem scary and you might think that you are alone with this eye disease, and that no one understands- in fact, many people have shared their keratoconus experience- here's a selection of great blogs about keratoconus from some of our online friends: Claire Harrington blogs about keratoconus and her experience with … Continue reading Blogs about keratoconus for you to read

Keratoconus, my story by Rae, part 2

By the summer of 2006 I was despairing of ever having decent eyesight again. Having now been to two different NHS hospitals I was wearing hard lens in one eye only- the left eye had nothing in it at all. I had been prescribed a very early hybrid lens for the left but I could … Continue reading Keratoconus, my story by Rae, part 2


UPDATED JAN 2019 Luckily for us, there is a wide choice of contact lenses available for those with keratoconus. Fitting contact lenses on a keratoconic cornea is challenging and time-consuming. You can expect plenty of return visits to fine-tune the fit and the prescription, especially if the keratoconus continues to progress. It's very unlikely that … Continue reading CONTACT LENSES FOR KERATOCONUS

Keratoconus- my story, by Rae

Hi! I am Rae, a 40 something female from Brighton in the UK. This is my story, about living with keratoconus. I had had dodgy eyesight since I was about 18 and was able to wear glasses and then soft contact lens. I found out that I had astigmatism later on and wore a toric … Continue reading Keratoconus- my story, by Rae

What is keratoconus?

Keratoconus (from Greek: kerato- horn, cornea; and konos cone), is a degenerative disorder of the eye in which structural changes within the cornea cause it to thin and change to a more conical shape than its normal gradual curve. New research suggests the weakening of the corneal tissue that leads to keratoconus may be due … Continue reading What is keratoconus?